Diffuse Intrinsic Pontine Glioma (DIPG) is a tumor found in the pons section of the brain, typically affecting children ages 6-10. It is inoperable, there is no proven form of treatment that will fully cure it, and the average prognosis for a child upon diagnosis is 6-9 months. The estimated amount of children diagnosed with DIPG each year is approximately 300 children. Little awareness is given to DIPG and, unfortunately, only 4% of funds given to cancer research actually goes to pediatric cancers.
DIPG gets less than 1% of funds and has a <1% survival rate. Unfortunately, DIPG is just one form of pediatric cancer that is almost always fatal.
*Check out these links to see clinical trials all over the world, including the ones I have seen to be most successful in the US over the past 6 years: the ONC201 trial and the MTX110 trial (both in NYC with Ronald McDonald houses nearby)*